Rare Disease Day 2019
Article published by Matt Norton, Director of Strategy and Client Solutions, S3 Connected Health on PMLive on 28 February 2019.
On Rare Disease Day in 2019 it is surprising to note that few rare diseases have benefited from the digitisation of condition management and disease information in the same way as more common conditions have. On first glance, it appears that the level of personalised human support needed for each complex case is not suited to the kind of digital therapy management and patient support services developed for more common conditions like diabetes or insomnia. There has therefore been a lack of investment in these services for rarer conditions.